As you may be aware, NHS England is commissioning a modern data service from the Health and Social Care Information Centre (HSCIC). This programme 'Care Data' will build on existing data services and expand it to provide linked secure data that will cover all care settings.
The ‘Care Data’ Programme will benefit patients as the information will support your treatment and care.
To allow more time to build understanding of the benefits of using this information, and to develop additional steps to promote awareness with patients and public, the data will now be collected from GP Surgeries in the Autumn instead of April.
As part of this understanding, Redbank Group Practice, The RLC Surgery and Mile Lane Surgery wished to know what our patients knew about their personal information being shared. We, therefore, shared a brief questionnaire via our websites, NHS Choices website and made copies available within our Reception areas.
Unfortunately, uptake was poor and attached is the feedback we collated. In summary, the majority of patients who responded were not aware of how their personal information is used, who has access and what patients can access themselves. Half the people who responded, indicated that they were aware that NHS England had commissioned this data service and the majority preferred for their information to not be shared.
As a reminder, patients do have the choice to opt out of this and this can be recorded on the patient’s notes. If you do wish to opt out, please complete the form that is available in the reception area or (for Redbank patients) if you prefer, send us an email to firstname.lastname@example.org .
Here is the patient survey that we asked patients to complete. Patient Survey re data